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WIDER VIEW : HIDDEN NEWS : CUTTING EDGE INFORMATION : HEALTH |
Tears Behind Closed Doors
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This
article is extracted from |
Diana
Holmes completed one year of her SRN (State Registered Nurse) training.
The ensuing years were plagued by ill health and many misdiagnoses, she
eventually ended up in a wheel chair. |
This is Diana's story In 1994 she started a campaign to look into the problems of diagnosing and managing thyroid conditions. She ran a Help Line for three years, during which time she spoke to over 6,000 thyroid sufferers. Eventually she met consultant Dr Gordon Skinner. He was so impressed with her work that he asked her to assist with his thyroid clinic, which she did for two and half years. She has now written two books about her life and the effects of hypothyroidism and co-authored a medical paper with Dr Skinner, as well as given talks throughout the UK. The diversity of the signs and symptoms of this chronic condition Hundreds of thousands of people in the UK (and millions worldwide) are suffering with hypothyroidism (under active thyroid gland). This condition is not being picked up because doctors are using blood test results as the only indicator. Signs, symptoms, history of the patient and a clinical appraisal should be used as other indicators. Therefore, many who suffer with thyroid conditions are not diagnosed or they are misdiagnosed with other diseases. The diversity of the signs and symptoms of this chronic condition of hypothyroidism leads doctors into taking symptoms in isolation and treating them, and therefore many people are pigeonholed into illnesses they do not have. These people are desperate to be well, but instead they are intimidated, fobbed off, and belittled by the medical profession. In this article I have included extracts from my book Tears Behind Closed Doors to highlight very important facts of the GRAVEST 'FAUX PAS' IN MEDICAL HISTORY. Over a period
of twenty-three years I was misdiagnosed with six serious diseases and
treated for them all. The diseases were, namely, Epilepsy (treated for
six months), Coeliac disease (an allergy to the protein in wheat and rye
for which I was on a Coeliac diet for eleven years), Polymyalgia Rheumatica
(a muscle disease for which I was treated for six months with high doses
of steroids). "My energy level continued to be way below par. The intensity of the dizziness varied, depending on my activities and now I had coeliac disease. The list of my physical disorders was growing. In addition I had the mental and emotional problem of coping with my life as my health continued in a downward spiral. My desperation to quantify my illness I was also beginning to experience the terrible frustration and loneliness of ill health. All who suffer from long-term or debilitating illnesses experience these feelings but usually try to conceal them. One feels ashamed yet dare not admit it to others. Feelings of anger also well up until they reach an intolerable over-spill; contributing to the drain on one's emotional well being. I often imagined that if I could put the feelings of dizziness, sleepiness, and the awful way I felt, on the table in front of my GP, then he would see that I wasn't making up this horrible nightmare. My desperation to quantify my illness to him was immense. Yet, to convey this to him in anything that would remotely resemble facts, was impossible for me. Before I had retired from work, I had taken out a Permanent Health Insurance to cover myself in case of illness. The policy was sold on, from one company to another, until a well-known company, by the name of Unum, bought it. I continued to receive payments from this company, under the terms of the policy, until one day they informed me that I was to be sent for a 'Dynatron Test'. This, I was told, would show up any problem with my muscles. I welcomed this, but not the journey to London. The test was horrid and very painful. The 'Dynatron Test' comprised pulling various limbs against a tensioned frame. The results were recorded on a computer. I was unable to complete the tests due to pain and fatigue. My husband and I travelled down by train to London, and on the return journey I was very ill. The pains in my back and the exhaustion were awful. The steward asked, 'Would you like some ice packs?' I said, 'Yes please.' He said that he thought that I would feel more comfortable in a first class compartment and so took us to our seats. We were impressed by his sensitivity! I attended the clinic in London for the 'Dynatron Test' on the 23rd May 1994. The letter my doctor received from Unum is set out below. Dear Dr
[name removed] If I was exerting volitional control over the examination as they suggested, this surely makes nonsense of the 'Dynatron Test'. The patient, as I see it, is in a 'no win' situation. For example, if I performed well on the test, I would have been told to return to work. By performing poorly on it, on the other hand, I was told that I was cheating and must return to work anyway. They accused me of cheating the machine and of this I stand innocent before my God. Can you
imagine how I felt after I read that letter? The horrors of whatever it
was I was suffering from were bad enough without being kicked, punched,
and kicked again while I was down. The stress
that the Dynatron Test and the letter caused was indescribable. My condition
became worse. I often heard myself saying, 'I am hurting, I just shuffle
along (this was inside the house. I had to use a wheelchair before I dare
venture out to the shops), I can't go any faster, when will the pain go
away? My body is so heavy, I am so exhausted but I must push on. . . oh
dear God, please help me!'"1
Dr Barry Durrant-Peatfield saved my life In 1994,
I went to see a private GP (MD), Dr Barry Durrant-Peatfield. He told me,
almost straight away, that I was suffering from hypothyroidism. I told
him that I'd had blood tests carried out for thyroid function and that
they had been returned within the 'reference interval.' He said that he
didn't place too much reliance on blood test results. I can truthfully
say that Dr Barry Peatfield saved my life. I started on treatment and
within two weeks my head had cleared. Previously I had suffered from a
'busy busy' sensation in my head. After a few months, most of my symptoms
had cleared up except my muscles, which took a few more months to become
strong again. I wrote to the DOH (department of Heath "After
two years of running the Help Line I approached Dr Gordon Skinner MD (Hons),
DSc, FRCOG, FRCPath, who was then Senior Lecturer at the Birmingham University
Medical School, and told him of the data I had collected. He made a request
to see it. Upon seeing it he asked me to assist him with thyroid clinics.
This I did for three years and with the data we collected from holding
the clinics I co-authored a medical paper with him. This was accepted
by the 'Journal of Nutritional and Environmental Medicine, (2000) 10,
115-124' Dr Skinner extended invitations, in the year 2000, to eminent
endocrinologists, biochemists and representatives from the British Thyroid
Foundation, to meet with us, and to discuss the diagnosis and management
of thyroid dysfunction - all parties declined
"3 Armed with
my research I approached Woman Magazine and they agreed to feature my
story, and with my telephone number at the end of the article I started
my Help Line. I wasn't prepared for the onslaught. Over three years, and
several magazines later, thousands of people had contacted me and I collected
thousands of questionnaires containing masses of data. Everybody's story
was a variation on a theme. Doctors need to be reinformed Around the same time that the NHS came into being, drugs were being used to combat TB and so patients were cured of this disease and lived beyond the age whereby TB would have killed them. According to Dr Broda Barnes (deceased), who practised in America - 'although these patients were living longer, they were now open to other diseases which could kill them, such as heart disease, diabetic complications, atherosclerosis, glycemic conditions, hypertension, and chronic hypothyroidism, which is a common diagnostic failure.'4 Hypothyroidism is sometimes called 'mild myxoedema,' but to those who suffer it is certainly not mild. Laboratories are working on the assumption, that blood testing for thyroid function, is 'an assumed fixed basis of comparison of 'so-called' healthy people,' so-called being the operative word. When the starting point is very loose then the end result cannot be deemed to be specific! As patients did not have a blood test when they were well, there was no need, therefore the doctor does not have a base line for them, from which to work. DNA (deoxyribonucleic acid) is the basic genetic material found in every living cell in our bodies. The chemical structure in every single person is different and everyone has his/her own personal pattern. There would be no need for a 'reference range' if we were all the same, but we are not all the same! The majority
of GPs and consultants do not know how the reference values are made up,
and therefore the results are interpreted without any flexibility. Thus
there is a problem with the diagnosis and management of hypothyroidism.
The patient has a poor quality of life through ill health, sometimes for
many years. This leads to lost potential. Dr Skinner
and I set up a Working Party, which I chaired. The Working Party comprised
of three doctors, a biochemist and a Bachelor of Science. We had two meetings
with a representative from the DOH, all to no avail. I sincerely
believe that GPs are not receiving the correct information from their
professional body. They must feel frustration when blood test results
are returned in the 'reference range.' Many times doctors may believe
that their patient is suffering from a thyroid condition, only to be upstaged
by a blood test result. They do need to be reinformed on the diagnosis
and management of thyroid conditions. I hope that by sharing my story
it will help the readers of Namaste to a greater vista. (You may take
this and Dr Barry Durrant-Peatfield's article to your GP).
The full text of this article can be found in Namaste Magazine Vol.7 Issue 1 Visit the website of Diana Holmes http://www.thyroidtears.co.uk This website is currently inactive |